My story of Cody / I call him Code

Code was born with a debilitating disease called Epidermolysis Bullosa (EB). This is genetic disorder that affects the skin. Severe blistering occurs with just the slightest touch or irritation from clothes etc. EB is incredibly painful. If you could remember your worst burn, than magnify that by ten, and cover your entire body you would then only begin to understand the pain & suffering experienced with EB. Constant visits to one specialist after another, none knowing exactly what course of action to take, as EB has no cure and all that can be done are measures to just try and ease his pain. I first met Code as an infant, not knowing the family well at that time; I acknowledged the disability and moved on with my life. Years later we crossed paths again, only to realize that Code and his mother were basically homeless, we offered our spare room. A year or two passed, and with the apartment not being a large one, my wife and I moved on, leaving the apartment to Code and his mother. Years passed, my wife and I moved to Utah, started our own family, and wanting to be near family members, while raising our kids, moved back to the SF. bay area. At some point I went to find my friend Code, only to discover that they had been evicted from the apartment, and were now in a small two room trailer in a less than desirable neighborhood.
Code is now 23 years old. He needs and deserves a place of his own that's clean, safe, and set up to accommodate the special needs associated with EB. A bi-weekly treatment of soaking, and full body wraps are being done at a local hospital. Volunteers drive him to and from these treatments. Ideally I would like to see his future residence outfitted so Cody could soak himself at his own leisure, and in the privacy of his own residence. A health care worker would be needed to wrap Code, but the difficult process of driving to and from treatments could be eliminated.
This young man is the gentlest soul I've ever encountered. He has a loving nature, infectious smile and laugh. I would like to create an atmosphere where both of these can be cultivated and nurtured, and with your donation to Miracles Through Music both of these can blossom, Cody can live in a clean, healthy environment, and some of his suffering be eased. Together we can make a tremendous difference.
 

Thank You,
Stevie T

After our journey began with Cody, our hearts were opened to many other's living with EB.  Babies, small children, toddlers and adults and the people who's lives they touch. We saw their tenacious spirits and incredible souls unwind into our hearts and from that moment, we were never the same.  No one deserves to be born with this devastating disease and we hope that with the help of other's we can someday make this disease something that people once heard of, but never have to experience.  To all the people who live with EB, to all the beautiful "butterfly" angels in heaven  - we are that one single drop of water that will someday fill oceans and hopefully make a difference that the world will soon be a part of.                                        

Laurie & Allie Sterner